Kidney Failure Health Update – Don’t be stubborn and always listen to your wife

Posted: July 29, 2017 in Health and kidney related

Hi there,

I have not done an update on my health for a while so I thought I would give you a short update.

Its been over a year and half since I have had my transplant. Unfortunately the new kidney has never worked properly.

This week I had my 3 monthly appointment with the Kidney transplant specialists at North Staffordshire hospital. My bloods results were as expected with my kidney function hovering around the 18 mark. The Doctors did not really say anything else except confirming that the donor kidney is only providing a little bit of kidney function. Although the new kidney has not worked as I expected I guess it has helped keep me off dialysis for the time being.  I have not been put back on the transplant list as the threshold to be put on the transplant list is 15% kidney function. But even though I still feel crap they cannot do anything for me. And they will not remove the kidney or reduce the anti-rejection medication.

Since my transplant I have been up and down. Some days I have been ok but most days I feel terrible. I try to do as much as I can and I try to keep my mind active. But it is getting more and difficult. I don’t know if it is the effects of all the anti-rejection medication I am on but the fatigue and tiredness seems to have worsened over the year. Most days I cannot do anything. So I take each day as it comes. If it is a good day I try to do as much as I can. If it is a bad day I do nothing.

In February I was admitted to hospital with a severe stomach bug.  I remember it was a Tuesday morning (well it was Shrove Tuesday to be exact) and I had just come down for breakfast. I was in the middle of making pancakes with poached eggs when I felt incredibly unwell. I felt extremely dizzy and light-headed. The room was spinning and the last thing I remember is thinking I needed to sit down before I collapse. Then the next thing I remember is coming round on the floor with my wife standing over me. She was on the phone to the ambulance. I told her I was fine and persuaded her not to continue with calling an ambulance. She then wanted to call the kidney unit but again I persuaded her not to.

I felt extremely unwell and had severe diarrhea but I did not want go into hospital as I thought I just had a bug and I will get over it. It took 3 days for my wife to eventually persuade me ring the kidney unit and go into hospital. I was incredibly stupid and stubborn. The hospital ran tests and determined I was severely dehydrated and that my kidney function, Potassium and Magnesium levels were dangerously low. They immediately put me on a drip. Further blood tests revealed that I had Camplyobacter (which is a common cause of food poisoning). They did not give me any antibiotics as it was just a matter of riding it out until it had all got out of my system.

After a few days (most of it spent on the toilet) and several drips I had recovered enough to go home. But this event taught me a valuable lesson. Don’t be so stubborn in the future. Listen to your body and more importantly always listen to your wife :).

I have to remember that I am not as healthy as I used to be and I cannot fight illnesses like I use to.  They are dangerous to me and I need to go to hospital if needed.

Anyway, that’s about it for now. thanks for reading.

Remember more than 10,000 people need and organ transplant in the UK. So donation is extremely important.

http://www.organdonation.nhs.uk

 

 

 

 

 

 

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Comments
  1. noelypb says:

    Always good to get an update from you Darren, often think how’re you doing – especially when I see your “other” blogs ;). Keep well, keep up the blogs and your lesson learned is spot on !

  2. stardust21881168 says:

    Dam right you should 😜

  3. Tim Prevett says:

    Hi Darren, I wish you all the best in this; I remember reading with shock your first update about your health. I hope things can get on the up for you. Take care, best wishes. Tim Prevett.

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